NEO-WKZ
Neonatologie WKZ-UMCU...
Description
Baseline standard clinical pre-perinatal and post-natal characteristics, maternal and neonatal risk factors, morbidities and the most common complications during the neonatal period, longitudinal follow up,...
General Design
- Cohort type
Clinical cohort, Population cohort, Case-control, Clinical trial, Registry, Biobank
- Design
Longitudinal
- Design description
Standard care and clinical trial data collected in the neonatology and perinatology with follow up data
- Collection type
Retrospective, Prospective
- Start/End year
2006 - ongoing
- Design paper
- Neurodevelopmental Outcomes After Neonatal Surgery for Major Noncardiac Anomalies
Population
- Countries
Netherlands (the)
- Number of participants
2000
- Number of participants with samples
400
- Population age groups
Prenatal, Infant (0-23 months), Child (2-12 years)
- Main medical condition
- IX Diseases of the circulatory system
- I60-I69 Cerebrovascular diseases
- I63.3 Cerebral infarction due to thrombosis of cerebral arteries
- I63.6 Cerebral infarction due to cerebral venous thrombosis, nonpyogenic
- I64 Stroke, not specified as haemorrhage or infarction
- I69.4 Sequelae of stroke, not specified as haemorrhage or infarction
- I61.5 Intracerebral haemorrhage, intraventricular
- I63.9 Cerebral infarction, unspecified
- I69.3 Sequelae of cerebral infarction
- ORPHAcodes
- Cerebral sinovenous thrombosis
- Pediatric arterial ischemic stroke
- COL4A1 or COL4A2-related cerebral small vessel disease
- Apnea of prematurity
- Periventricular leukomalacia
- Necrotizing enterocolitis
- Infant acute respiratory distress syndrome
- Bronchopulmonary dysplasia
- Retinopathy of prematurity
- Sepsis in premature infants
- Syndromic anorectal malformation
- Duodenal atresia
- High isolated anorectal malformation
- Intermediate isolated anorectal malformation
- Low isolated anorectal malformation
- Gastroschisis
- Isolated anorectal malformation
- Non-syndromic anorectal malformation with perineal fistula
- Non-syndromic anorectal malformation with rectourethral fistula
- Non-syndromic anorectal malformation with rectovesical fistula
- Non-syndromic anorectal malformation with vestibular fistula
- Non-syndromic anorectal malformation without fistula
- Non-syndromic anorectal malformation with anal stenosis
- Non-syndromic anorectal malformation with pouch colon
- Non-syndromic anorectal malformation with rectal atresia
- Non-syndromic anorectal malformation with rectal stenosis
- Non-syndromic anorectal malformation with rectovaginal fistula
- Non-syndromic anorectal malformation with H-type fistula
- Omphalocele
- Anorectal malformation
- Gastroduodenal malformation
- VII Diseases of the eye and adnexa
- H30-H36 Disorders of choroid and retina
- H35.1 Other retinal disorders - Retinopathy of prematurity
- XV Pregnancy, childbirth and the puerperium
- O00-O08 Pregnancy with abortive outcome
- O10-O16 Oedema, proteinuria and hypertensive disorders in pregnancy, childbirth and the puerperium
- O20-O29 Other maternal disorders predominantly related to pregnancy
- O30-O48 Maternal care related to the fetus and amniotic cavity and possible delivery problems
- O60-O75 Complications of labour and delivery
- O80-O84 Delivery
- O85-O92 Complications predominantly related to the puerperium
- O94-O99 Other obstetric conditions, not elsewhere classified
- XVI Certain conditions originating in the perinatal period
- P00-P04 Fetus and newborn affected by maternal factors and by complications of pregnancy, labour and delivery
- P10-P15 Birth trauma
- P05-P08 Disorders related to length of gestation and fetal growth
- P20-P29 Respiratory and cardiovascular disorders specific to the perinatal period
- P35-P39 Infections specific to the perinatal period
- P50-P61 Haemorrhagic and haematological disorders of fetus and newborn
- P70-P74 Transitory endocrine and metabolic disorders specific to fetus and newborn
- P75-P78 Digestive system disorders of fetus and newborn
- P80-P83 Conditions involving the integument and temperature regulation of fetus and newborn
- P90-P96 Other disorders originating in the perinatal period
- XVII Congenital malformations, deformations and chromosomal abnormalities
- Q20-Q28 Congenital malformations of the circulatory system
- Q25.0 Congenital malformations of great arteries - Patent ductus arteriosus
- Q38-Q45 Other congenital malformations of the digestive system
- Q39.1 Atresia of oesophagus with tracheo-oesophageal fistula
- Q39.2 Congenital tracheo-oesophageal fistula without atresia
- Inclusion criteria
- Age group inclusion criterion
- Defined population inclusion criterion
Contributors
- prof. dr. Manon Bendersm.benders@umcutrecht.nl
Additional organisations
- University of UtrechtÂ
Available Data & Samples
Data categories
- Imaging data
- Medical records
- Survey data
- Physiological/Biochemical measurements
Areas of information
- Physical measures and assessments
- Brain and nerves
- Physical characteristics
- Anthropometry
- Circulation and respiration
- Sensory and pain
- Socio-demographic and economic characteristics
- Age/birthdate
- Sex/gender
- Twin
- Family and household structure
- Education
- Residence
- Birthplace
- Citizenship and immigrant status
- Ethnicity, race and religion
- Language
- Income, possessions, and benefits
- Other socio-demographic and economic characteristics
- Symptoms and signs
- Symptoms and signs involving the circulatory and respiratory systems (R00-R09)
- Symptoms and signs involving the digestive system and abdomen (R10-R19)
- Symptoms and signs involving nervous and musculoskeletal systems (R25-R29)
- General symptoms and signs (R50-R69)
- Symptoms related to multiple categories
- Medication and supplements
- Medication and supplement intake
- Other and unspecified pharmacological interventions
- Non-pharmacological interventions
- Cognitive, psychological and sensory interventions
- Surgical interventions
- Death
- Vital status
- Cause of death
- Other end of life or death-related information
- Administrative information
- Questionnaire and interview-related information
- Health and community care services utilization
- Hospitalizations
- Cognition, personality and psychological measures and assessments
- Cognitive functioning
- Other psychological measures and assessments
- Preschool, school and work life
- Preschool life
- School life
- Social environment and relationships
- Parenting and familial environment
Subpopulations
List of subcohorts or subpopulations for this resource...
| Name | Description | Number of participants |
|---|
Collection events
List of collection events defined for this resource...
| Name | Description | Participants | Start end year |
|---|
Partners
Networks
List of networks in which this cohort is involved...
Publications
Development of Cortical Morphology Evaluated with Longitudinal MR Brain Images of Preterm Infants
Early qualitative and quantitative amplitude-integrated electroencephalogram and raw electroencephalogram for predicting long-term neurodevelopmental outcomes in extremely preterm infants in the Netherlands: a 10-year cohort study
Longitudinal Regional Brain Development and Clinical Risk Factors in Extremely Preterm Infants
Microstructural brain development between 30 and 40 weeks corrected age in a longitudinal cohort of extremely preterm infants
Neonatal Surgery for Noncardiac Congenital Anomalies: Neonates at Risk of Brain Injury
Neurodevelopmental Outcomes After Neonatal Surgery for Major Noncardiac Anomalies
Access conditions
An official data request, upond ethical approval, must be submitted to the PI for consideration...
- Data access conditions
- health or medical or biomedical research
- disease specific research
- Data use conditions
- research specific restrictions
- collaboration required
- ethics approval required
- project specific restriction
- institution specific restriction
- Release type
- Periodically
- Release description
bi-annually the data is enriched with more inclusions and follow up