NEO-WKZ
Neonatologie WKZ-UMCU...
Description
Baseline standard clinical pre-perinatal and post-natal characteristics, maternal and neonatal risk factors, morbidities and the most common complications during the neonatal period, longitudinal follow up,...
General Design
- Type
- Biobank, Clinical trial, Cohort study, Registry
- Cohort type
- Clinical cohort, Population cohort, Case-control
- Data collection type
- Retrospective, Prospective
- Design
- Longitudinal
- Design description
- Standard care and clinical trial data collected in the neonatology and perinatology with follow up data
- Start/End data collection
- 2006 (ongoing)
- Design paper
- Neurodevelopmental Outcomes After Neonatal Surgery for Major Noncardiac Anomalies
Population
- Countries
- Netherlands (the)
- Number of participants
- 2000
- Population age groups
- Prenatal, Infant (0-23 months), Child (2-12 years)
- Main medical condition
- VII Diseases of the eye and adnexa
- H30-H36 Disorders of choroid and retina
- H35.1 Other retinal disorders - Retinopathy of prematurity
- IX Diseases of the circulatory system
- I60-I69 Cerebrovascular diseases
- I61.5 Intracerebral haemorrhage, intraventricular
- I63.3 Cerebral infarction due to thrombosis of cerebral arteries
- I63.6 Cerebral infarction due to cerebral venous thrombosis, nonpyogenic
- I63.9 Cerebral infarction, unspecified
- I64 Stroke, not specified as haemorrhage or infarction
- I69.3 Sequelae of cerebral infarction
- I69.4 Sequelae of stroke, not specified as haemorrhage or infarction
- XV Pregnancy, childbirth and the puerperium
- O00-O08 Pregnancy with abortive outcome
- O10-O16 Oedema, proteinuria and hypertensive disorders in pregnancy, childbirth and the puerperium
- O20-O29 Other maternal disorders predominantly related to pregnancy
- O30-O48 Maternal care related to the fetus and amniotic cavity and possible delivery problems
- O60-O75 Complications of labour and delivery
- O80-O84 Delivery
- O85-O92 Complications predominantly related to the puerperium
- O94-O99 Other obstetric conditions, not elsewhere classified
- XVI Certain conditions originating in the perinatal period
- P00-P04 Fetus and newborn affected by maternal factors and by complications of pregnancy, labour and delivery
- P05-P08 Disorders related to length of gestation and fetal growth
- P10-P15 Birth trauma
- P20-P29 Respiratory and cardiovascular disorders specific to the perinatal period
- P35-P39 Infections specific to the perinatal period
- P50-P61 Haemorrhagic and haematological disorders of fetus and newborn
- P70-P74 Transitory endocrine and metabolic disorders specific to fetus and newborn
- P75-P78 Digestive system disorders of fetus and newborn
- P80-P83 Conditions involving the integument and temperature regulation of fetus and newborn
- P90-P96 Other disorders originating in the perinatal period
- XVII Congenital malformations, deformations and chromosomal abnormalities
- Q20-Q28 Congenital malformations of the circulatory system
- Q20 Congenital malformations of cardiac chambers and connections
- Q20.0 Congenital malformations of cardiac chambers and connections - Common arterial trunk
- Q21.8 Other congenital malformations of cardiac septa
- Q20.1 Congenital malformations of cardiac chambers and connections - Double outlet right ventricle
- Q20.2 Congenital malformations of cardiac chambers and connections - Double outlet left ventricle
- Q20.3 Congenital malformations of cardiac chambers and connections - Discordant ventriculoarterial connection
- Q20.4 Congenital malformations of cardiac chambers and connections - Double inlet ventricle
- Q20.5 Congenital malformations of cardiac chambers and connections - Discordant atrioventricular connection
- Q20.8 Other congenital malformations of cardiac chambers and connections
- Q20.9 Congenital malformation of cardiac chambers and connections, unspecified
- Q21 Congenital malformations of cardiac septa
- Q21.9 Congenital malformation of cardiac septum, unspecified
- Q22.6 Congenital malformations of pulmonary and tricuspid valves - Hypoplastic right heart syndrome
- Q23.4 Congenital malformations of aortic and mitral valves - Hypoplastic left heart syndrome
- Q25.0 Congenital malformations of great arteries - Patent ductus arteriosus
- Q38-Q45 Other congenital malformations of the digestive system
- Q39.1 Atresia of oesophagus with tracheo-oesophageal fistula
- Q39.2 Congenital tracheo-oesophageal fistula without atresia
- XVIII Symptoms, signs and abnormal clinical and laboratory findings, not elsewhere classified
- R00-R09 Symptoms and signs involving the circulatory and respiratory systems
- R09.0 Other symptoms and signs involving the circulatory and respiratory systems - Asphyxia
- ORPHAcodes
- Pulmonary valve agenesis-tetralogy of Fallot-absence of ductus arteriosus syndrome
- Syndromic anorectal malformation
- Duodenal atresia
- High isolated anorectal malformation
- Intermediate isolated anorectal malformation
- Low isolated anorectal malformation
- Periventricular leukomalacia
- Congenitally uncorrected transposition of the great arteries with cardiac malformation
- Hypoplastic left heart syndrome
- Gastroschisis
- Cerebral sinovenous thrombosis
- Tetralogy of Fallot
- Fallot complex-intellectual disability-growth delay syndrome
- Necrotizing enterocolitis
- Pediatric arterial ischemic stroke
- COL4A1 or COL4A2-related cerebral small vessel disease
- Isolated anorectal malformation
- Non-syndromic anorectal malformation with perineal fistula
- Non-syndromic anorectal malformation with rectourethral fistula
- Non-syndromic anorectal malformation with rectovesical fistula
- Non-syndromic anorectal malformation with vestibular fistula
- Non-syndromic anorectal malformation without fistula
- Non-syndromic anorectal malformation with anal stenosis
- Non-syndromic anorectal malformation with pouch colon
- Non-syndromic anorectal malformation with rectal atresia
- Non-syndromic anorectal malformation with rectal stenosis
- Non-syndromic anorectal malformation with rectovaginal fistula
- Non-syndromic anorectal malformation with H-type fistula
- Omphalocele
- Infant acute respiratory distress syndrome
- Bronchopulmonary dysplasia
- Retinopathy of prematurity
- Sepsis in premature infants
- Anorectal malformation
- Gastroduodenal malformation
- Hypoplastic right heart syndrome
- Complete atrioventricular septal defect-tetralogy of Fallot
- Apnea of prematurity
- Inclusion criteria
- Age group inclusion criterion
- Defined population inclusion criterion
Organisations
Lead organisations
- UMC Utrecht (UMCU)Netherlands (the)
Researcher
Additional organisations
- University of Utrecht  (UU)Netherlands (the)
Contributors
Subpopulations
List of subpopulations for this resource...
| Name | Description | Number of participants | |
|---|---|---|---|
No results for current selection |
Collection events
List of collection events defined for this resource...
| Name | Description | Participants | Start end year | |
|---|---|---|---|---|
No results for current selection |
Networks
Part of networks...
Publications
Development of Cortical Morphology Evaluated with Longitudinal MR Brain Images of Preterm Infants
Early qualitative and quantitative amplitude-integrated electroencephalogram and raw electroencephalogram for predicting long-term neurodevelopmental outcomes in extremely preterm infants in the Netherlands: a 10-year cohort study
Longitudinal Regional Brain Development and Clinical Risk Factors in Extremely Preterm Infants
Microstructural brain development between 30 and 40 weeks corrected age in a longitudinal cohort of extremely preterm infants
Neonatal Surgery for Noncardiac Congenital Anomalies: Neonates at Risk of Brain Injury
Neurodevelopmental Outcomes After Neonatal Surgery for Major Noncardiac Anomalies
Access conditions
An official data request, upond ethical approval, must be submitted to the PI for consideration...
- Data access conditions
- health or medical or biomedical research
- disease specific research
- Data use conditions
- research specific restrictions
- collaboration required
- ethics approval required
- project specific restriction
- institution specific restriction
- Data access fee
- false
- Release type
- Periodically
- Release description
- bi-annually the data is enriched with more inclusions and follow up
- Prelinked
- false